Self-Reported Self-Management Needs of Transitioning Adults with Congenital Heart Disease

Track: 30 Minute Podium

Session Number: 504B
Date: Sat, Apr 7th, 2018
Time: 10:25 AM - 10:55 AM

Description:

Centers for Disease Control and Prevention (2016). Congenital heart defects: data & statistics. Retrieved from www.cdc.gov/ncbddd/heartdefects/data
Chiang, Y., Chen, C., Su, W., Wang, J., Lu, C., Li, Y., & Moons, P. (2015). Between invisible defects and visible impact: the life experiences of adolescents and young adults with congenital heart disease. Journal of Advanced Nursing, 71(3), 599-608.
Cramm, J., & Nieboer, A. (2015). Chronically ill patients’ self-management abilities to maintain overall well-being: what is needed to take the next step in the primary care setting? BMC Family Practice, 16, 123.
Goossens, E., Fleck, D., Canobbio, M., Harrison, J., & Moons, P. (2013). Development of an international research agenda for adult congenital heart disease nursing. European Journal of Cardiovascular Nursing, 12(1), 7-16.
While, A., Heery, E., Sheehan, A., & Coyne, I. (2017). Health-related quality of life of young people with long-term illnesses before and after transfer from child to adult healthcare. Child Care Health Development, 43(1), 144-151.
Session Type: Research

Session Description: This study investigated the self-reported self-management needs of those with congenital heart disease as they transitioned to self-care in adulthood. Self-management needs from a national sample are presented and then associations of these needs are shown with lesion severity, self-identified gender, age, developmental characteristics, race/ethnicity, and perceived quality of life.
Primary Presenter Bio: Laura Hays is an advanced practice nurse practitioner in the General Pediatric Clinic and with the Division of Genetics at Arkansas Children's Hospital in Little Rock, Arkansas. She is a Doctoral Candidate in the College of Nursing at the University of Arkansas for Medical Sciences. She has advocated for federal research funding for the needs of the congenital heart disease population and has published nationally and internationally on issues related to the transitioning population of adults with congenital heart disease.
Primary Presenter Institution: University of Arkansas for Medical Sciences
Session Type: Research

Session Description: This study investigated the self-reported self-management needs of those with congenital heart disease as they transitioned to self-care in adulthood. Self-management needs from a national sample are presented and then associations of these needs are shown with lesion severity, self-identified gender, age, developmental characteristics, race/ethnicity, and perceived quality of life.
Primary Presenter Bio: Laura Hays is an advanced practice nurse practitioner in the General Pediatric Clinic and with the Division of Genetics at Arkansas Children's Hospital in Little Rock, Arkansas. She is a Doctoral Candidate in the College of Nursing at the University of Arkansas for Medical Sciences. She has advocated for federal research funding for the needs of the congenital heart disease population and has published nationally and internationally on issues related to the transitioning population of adults with congenital heart disease.
Primary Presenter Institution: University of Arkansas for Medical Sciences